Registries can provide sound data needed by clinicians and organisations to improve patient safety and quality of care
In June 2009, the National Health and Hospitals Reform Commission released its report proposing an agenda to transform the Australian health system.1 A critical element of this agenda is improved monitoring of service delivery and outcomes of care.
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- 1. National Health and Hospitals Reform Commission. A healthier future for all Australians: final report. Canberra: NHHRC, 2009. (Commonwealth of Australia Publications No. P3-5499). http://www.nhhrc.org.au/internet/nhhrc/publishing.nsf/Content/nhhrc-report (accessed Jan 2009).
- 2. Tu J, Willison D, Silver F, et al. Impracticality of informed consent in the registry of the Canadian Stroke Network. N Engl J Med 2004; 350: 1414-1421.
- 3. Littenberg B, MacLean CD. Passive consent for clinical research in the age of HIPAA. J Gen Intern Med 2006; 21: 207-211.
- 4. Jakobsen E, Palshof T, Osterlind K, Pilegaard H. Data from a national lung cancer registry contributes to improve outcome and quality of surgery: Danish results. Eur J Cardiothorac Surg 2009; 35: 348-352.
- 5. McDonald S. Indigenous transplant outcomes in Australia: what the ANZDATA registry tells us. Nephrology (Carlton) 2004; 9 Suppl 4: S138-S143.
- 6. Fonarow GC, Yancy CW, Albert NM, et al. Improving the use of evidence-based heart failure therapies in the outpatient setting: the IMPROVE HF performance improvement registry. Am Heart J 2007; 154: 12-38.
- 7. Kapral MK, Laupacis A, Phillips SJ, et al. Stroke care delivery in institutions participating in the registry of the Canadian Stroke Network. Stroke 2004; 35: 1756-1762.
- 8. Department of Health (UK). The inquiry into the management of care of children receiving complex heart surgery at the Bristol Royal Infirmary: final report. London: Bristol Royal Infirmary Inquiry, 2001. http://www.bristol-inquiry.org.uk/final_report/report/index.htm (accessed Jan 2010).
- 9. Graves S. Benefits and limitations of registries. Proceedings of the 54th Nordic Orthopaedic Federation Congress; 2008 Jun 11-13; Amsterdam, The Netherlands.
- 10. Cameron P, Gabbe B, Cooper D, et al. A statewide system of trauma care in Victoria: effects on patient survival. Med J Aust 2008; 189: 546-550. <MJA full text>
- 11. EyeNet Sweden. Handbook for establishing quality registries. Sweden: EyeNet Sweden, 2005. http://demo.web4u.nu/eyenet/uploads/Handboken%20engelsk%20version%20060306.pdf (accessed Jan 2010).
- 12. The Information Centre, NHS. DoCDat: Directory of clinical databases. http://www.icapp.nhs.uk/docdat/ (accessed Jan 2010).
- 13. Black N, Payne M. Directory of clinical databases: improving and promoting their use. Qual Saf Health Care 2003; 12: 348-352.
- 14. Agency for Healthcare Research and Quality. Registries for evaluating patient outcomes: a user’s guide. Rockville, Md: AHRQ, 2006. (AHRQ Task Order: 290-05-0035-1 Project ID No 10-EHC.) http://effectivehealthcare.ahrq.gov/index.cfm/search-for-guides-reviews-and-reports/?pageaction=displayproduct&productid=12 (accessed Jan 2010).
- 15. Australian Commission on Safety and Quality in Health Care. Operating principles and technical standards for Australian clinical quality registries. November 2008. http://www.health.gov.au/internet/safety/publishing.nsf/Content/0C3D19DE3FE702EFCA2575AB00838448/$File/OP_TS-Nov2008.pdf (accessed Jan 2010, link updated 19 Feb 10).
- 16. Evans S, Bohensky M, Cameron P, McNeil J. A survey of Australian clinical registries: can quality of care be measured [abstract]? Intern Med J 2009. Epub ahead of print 2009 Oct 7. doi: 10.1111/j.1445-5994.2009.02068.x. http://www.ncbi.nlm.nih.gov/pubmed?term=%22Internal+medicine+journal%22%5BJour%5D+AND+2009%5Bpdat%5D+AND+Evans%5Bfirst+author%5D+AND+Australian&TransSchema=title (accessed Jan 2010).
- 17. Scott IA. Why we need a national registry in interventional cardiology. Med J Aust 2008; 189: 223-227. <MJA full text>
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The Centre of Research Excellence in Patient Safety is partially funded by the Australian Commission on Safety and Quality in Health Care and is designated as a National Health and Medical Research Council (NHMRC) Centre of Research Excellence.
None identified.