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Obtaining consent affects the value of the Western Australian autism register

Emma J Glasson and John Wray
Med J Aust 2004; 181 (9): . || doi: 10.5694/j.1326-5377.2004.tb06416.x
Published online: 1 November 2004

Emma J Glasson,* John Wray


  • 1 University of Western Australia, Telethon Institute for Child Health Research, West Perth, WA, and WA Register for Autism Spectrum Disorders
  • 2 State Child Development Centre, West Perth, WA, and WA Register for Autism Spectrum Disorders



  • 1. Tu JV, Willison DJ, Silver FL, et al. Impracticability of informed consent in the Registry of the Canadian Stroke Network. N Engl J Med 2004; 350: 1414-1421.
  • 2. Ingelfinger JR, Drazen JM. Registry research and medical privacy. N Engl J Med 2004; 350: 1452-1453.
  • 3. Williamson OD, Cameron PA, McNeil JJ. Medical registry governance and patient privacy. Med J Aust 2004; 181: 125-126. <MJA full text>
  • 4. Glasson EJ. The Western Australian Register for Autism Spectrum Disorders [letter]. J Paediatr Child Health 2002; 38: 321.

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