Legislative changes made without public discussion allow disclosure without patient consent
Of all the ethical principles underlying medical practice, confidentiality is so fundamental that its breach is an illegal, high-order betrayal of responsibility. Disclosing personal medical information without consent profoundly violates the autonomy, beneficence and privacy that patients have always rightly expected.1 Although disclosure without consent has only rarely been necessitated by an urgent threat to life or health, two recent legal erosions of doctor–patient confidentiality illustrate how privacy-invading legislation can so easily and silently harm individuals who do not form sufficiently clamorous rights-demanding groups. In one, a state government directs that private medical records be lodged in an Orwellian sounding “Central Register” without regard for the individual’s knowledge, and risking privacy breaches by seeking consent for disclosure to third parties. The other permits disclosures of a patient’s medical information against their wishes even without any urgent threat to the life or health of another person. Both represent unreasonable intrusions on privacy and erosion of personal liberty.
The full article is accessible to AMA members and paid subscribers. Login to read more or purchase a subscription now.
Please note: institutional and Research4Life access to the MJA is now provided through Wiley Online Library.
- 1. Beauchamp TL, Childress JF. Principles of biomedical ethics. 6th ed. New York: Oxford University Press USA, 2008.
- 2. New South Wales Government. Assisted Reproductive Technology Act 2007 (NSW). No. 69. http://www.legislation.nsw.gov.au/scanview/inforce/s/1/?TITLE=%22Assisted%20Reproductive%20Technology%20Act% 202007%20No%2069%22&nohits=y (accessed Mar 2011).
- 3. Australian Senate Legal and Constitutional Affairs References Committee. Inquiry into donor conception in Australia. Canberra: Commonwealth of Australia, 2011. http://www.aph.gov.au/senate/committee/legcon_ctte/donor_conception/index.htm (accessed Mar 2011).
- 4. National Health and Medical Research Council. Medical genetic testing: information for health professionals. Canberra: NHMRC, 2010. http://www.nhmrc.gov.au/publications/synopses/e99syn.htm (accessed Mar 2011).
None identified.