The challenge of providing a multidisciplinary response to complex health problems
A developmental disability is a neurological abnormality having its onset in childhood that is associated with long-term neurological and developmental deficits (for example, spastic quadriplegic cerebral palsy). Although the degree of physical and intellectual disability varies greatly, people with a severe developmental disability often have very limited mobility, are dependent on caregivers for their daily needs, and usually have several concomitant medical problems. Because of their complex health needs, consensus is growing that multidisciplinary clinics provide the optimal setting for assessment and management of patients with a developmental disability.
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- 1. Eyman RK, Grossman HJ, Chaney RH, Call TL. The life expectancy of profoundly handicapped people with mental retardation. N Engl J Med 1990; 323: 584-589.
- 2. Reddihough DS, Baikie G, Walstab JE. Cerebral palsy in Victoria, Australia: mortality and causes of death. J Paediatr Child Health 2001; 37: 183-186.
- 3. Hollins S, Attard MT, von Fraunhofer N, et al. Mortality in people with learning disability: risks, causes and death certification findings in London. Dev Med Child Neurol 1998; 40: 50-56.
- 4. Böhmer CJM, Niezen-de Boer MC, Klinkenberg-Knol EC, et al. The prevalence of gastroesophageal reflux disease in institutionalized intellectually disabled individuals. Am J Gastroenterol 1999; 94: 804-810.
- 5. Sondheimer JM, Morris BA. Gastroesophageal reflux among severely retarded children. J Pediatr 1979; 94: 710-714.
- 6. Arrowsmith FE, Allen JR, Gaskin KJ, et al. Reduced body protein in children with spastic quadriplegic cerebral palsy. Am J Clin Nutr 2006; 83: 613-618.
- 7. Somerville H, Tzannes G, Wood J, et al. Gastrointestinal and nutritional problems in severe developmental disability. Dev Med Child Neurol 2008; 50: 712-716.
- 8. Sullivan PB, Juszczak E, Bachlet AM, et al. Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy. Dev Med Child Neurol 2004; 46: 796-800.
- 9. Morrow AM, Quine S, O’Loughlin EV, Craig JC. Different priorities: a comparison of parents’ and health professionals’ perceptions of quality of life in quadriplegic cerebral palsy. Arch Dis Child 2008; 93: 119-125.
- 10. Lin JD, Yen CF, Loh CH, et al. A cross sectional study of the characteristics and determinants of emergency care utilization among people with intellectual disabilities in Taiwan. Res Dev Disabil 2006; 27: 657-667.
The dysphagia clinics at Westmead Hospital and the Children’s Hospital at Westmead are partially supported by the NSW Department of Ageing, Disability and Home Care, for provision of clinical services (half-time nurse coordinator salaries at both sites).