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Informing patients about emerging treatment options: creating “saviour siblings” for haemopoietic stem cell transplant

Kimberly A Strong
MJA 2009; 190 (9): 506-507
Abstract
  • In June 2008, the ABC screened a television documentary involving a couple who decided to have an additional child in the hope of obtaining umbilical cord blood to treat their daughter who had leukaemia.

  • The couple conceived naturally, meaning that there was a one in four chance that their child would be suitably matched. They seemed to be unaware of technologies that, if successful, could provide a near certainty that the next child would be a matched “saviour sibling”.

  • This story raises questions about whether clinicians have an obligation to discuss emerging and morally contentious treatment options.

  • Ignorance of technology, assumptions about availability, and medical assessment of burdens and benefits may affect attitudes towards treatment options, but they do not justify non-disclosure of information.

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©The Medical Journal of Australia 2009 www.mja.com.au PRINT ISSN: 0025-729X ONLINE ISSN: 1326-5377